Ho, hum.


Everything is crashing down,

Beneath my smile is a frown,

The horror that lies deep inside,

Is sometimes hard to hide.

One day everything is fine,

I have the clarity of mind,

But then the next it’s crashing down,

Putting me flat on the ground.

You don’t see it,

But there it sits,

Chewing off bits, and bits and bits.


Invisible it may be,

So invisible does that make me ?


The bad days seem to come more frequently now. The duration is also longer. It is so dispiriting to be forced to do nothing when you want to, but your body doesn’t want you to. Even on good days, the day is segmented, as if I do too much, a good day quickly turns into a bad one. So a task that might be easily completed in an hour, becomes 3 or 4 hours, as after a 10 or 15 minute stint,  you can feel it starting to bite in. Push it past that, without a 20 or 30 minute break, it starts not only to bite, it rips pieces off.

Yes, today was not a great day.




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